Amanda Scott – Segment 12

I will be running 220 miles in 8 days in honor of the mother and sister to STOP MS with the 2020 Ultra Relay Team.
10% Funded
  • $1,010.00 Donated
  • $10,000.00 Goal
  • 9 Donors

About the Campaign

I am honored for the privilege to be part of MS Run the US for a second time. This year I will get to run through the town I’m happy to call home. We were so close to raising the $10,000 two years ago and this year I’m certain we can do it together! Not only that…..but we gained about 44 extra miles to trek!

As you may know, unfortunately my family is very familiar with Multiple Sclerosis (MS). Not a day goes by that it does not cross our minds. Often it brings us to tears. It’s hard to sit back knowing your loved ones are in awful pain and there is little to nothing you can do about it.

My mother, Deana, my hero, was diagnosed with relapsing-remitting MS on May 3rd 1986. I was only 6 years old at the time. I remember mom being sick all the time with vision loss and massive migraines. At times she was unable to use her right arm or hand. She had total feeling loss in her feet that lasted months at a time. In 1986 the only option they had to treat MS was aggressive steroid treatments. This massively affected her quality of daily living. My mother has always been an amazingly strong person and kept moving for the sake of 4 small children. I want to do the same for her.

In 2008 I was living out in Colorado attending Colorado State University. My mom had called me to tell me that my younger sister Samantha “Sami” had been sick lately. She was having balance issues and falling a lot. This only continued to progress. Shortly after, she too was diagnosed with MS. She was only 25 at the time with three small children. Doctors said it was just as my mom had, Relapsing MS! This couldn’t be true!? My sister continued to decline at a rapid pace. This couldn’t be MS? This wasn’t like my mom! We were able to get an appointment with Mayo Clinic in Rochester MN for a second opinion. Again, in 2011, we were confirmed it was in fact MS.  Not only MS but Primary Progressive MS! PPMS is a rare form of MS that will just continue to progress with no remission. It’s just crazy how it can be so different person to person.

Sami has continued to decline since her diagnoses. The disease has confined her to a hospital bed in her Livingroom for many years now. She has been on and off Hospice services throughout the past couple years with little to no relieve. Seeing my sister in so much pain, a multitude of trips to the ER, major surgeries to try and help her quality of life and alleviate agony is so awful that I cannot possibly find the words to explain but heartache! It just kills me to watch such a young person miss out on all the things that life may have had to offer. But, with that said, she will be the first to say, “We don’t and shouldn’t ask why”!

Needless to say this is my reason. I strive to remain strong; their positive spirit keeps me that way. I will continue to fight their fight as long as I can.

I want to do something so big to bring awareness to MS that people can’t help but notice!

I hope you will help me reach my goal of raising $10,000 this year, and follow my journey along the way. Many thanks for your support — and don’t forget to forward this to anyone who you think might want to donate too!